Chronically Parenting- Day 4…


I know I’ve covered “relapses” and “FaceTiming” before but I wanted to talk about it some more. At present, I’ve been in the hospital for 9 of 11 days receiving plasmaphresis for the condition I have called Tranverse Myelitis. (side note: I DO NOT ever say “My Transverse Myelitis.” It is the chronic condition that I have but it does not get to define who I am”) <—So Stubborn I know. Anywho, around day 4, I get a massive case of the Bummers. I’m missing my kids terribly, missing being at their football games, tucking them in at night, and reading with them. Thankfully, we live in an age where we have programs like Skype and FaceTime to help keep us connected in awesome ways. The upper left photo is me doing homework with my youngest. The upper right photo, is me being FaceTimed in to my son’s game. I’ve found that continuing to take part in their daily activities is monumental when you have a condition that keeps you in the hospital regularly. So, if you don’t have these “new fandangled technological advances”, I highly suggest getting them and learning to use them.

Some ways to “Be there” using FaceTime or Skype besides just to ask what the kids ate at lunch for school today:

  1. Doing homework/reading with your kids daily (also takes a little pressure off of the other parent that’s at home juggling everything while you’re in the hospital)
  2. Sporting events, Band shows, Plays, whatever you’re kids are into, just because you can’t physically be there doesn’t mean you have to miss out on the action
  3. Playing games! Hangman, Tic Tac Toe, Board games. This is a fun way to interact!
  4. Have fun planning a special day when you get out of the hospital. My son wants to go on a camping trip for his Birthday coming up so we’ve been devising a list of things we will need, people he wants to invite, and selecting a location.

1 thought on “Chronically Parenting- Day 4…”

  1. Yes, technology is a poor substitute, but it is a substitute. Since I became bedridden due to TM, technology has allowed me to keep in touch with my family, friends, and the world in ways I never thought possible. Like you, I am able to write about my life, and share whatever “wisdom” I have gleaned along the way. As always, a well-written, thought-provoking post!

    Liked by 1 person

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