This is a photo of my super awesome kids and I during my most recent hospitalization. I was in the hospital for 17 days and missed my daughters cheer competition and my boys’ football games. As a mom, this was the most difficult part of my whole hospital stay
Some of us with Autoimmune/Neurological diseases endure long hospital stays due to relapses/flare ups of our conditions. Since 2014, the onset of mine, I’ve been hospitalized many times with those stays lasting anywhere from 5-17 days. If I’m “lucky enough” not to have to be in the hospital during a flare up or relapse, I’m stuck in bed for days on end, often times hooked up to an IV and getting home health care.
Point blank: It sucks. So, what do you do when you’re a parent and you’re stuck in the hospital but still have the undying need to show your children you’re still there for them as there mom? Well, here are a few things I’ve done.
- FaceTime. Technology sure comes in handy sometimes. While I was in the hospital, a my sister went to my kids’ sports events and I watched them live using FaceTime. I even got to FaceTime with them right after the even to congratulate them and let them know I was there watching and I’m so super proud!
- When they come for a visit, don’t just sit around wallering in sadness. Do something fun! Have them bring a game they like to play, color with them, play toss the ball in the bedpan (personal fave).
- Don’t be afraid to let your kids see you sick. Do not keep them from seeing you just because you may be hooked up to machines, haven’t washed your hair in a week, and you look like crap. Put a hat on, throw on some lip gloss, and see your kids…because they really want to see you, no matter how well or unwell you are.