Chronically Parenting-Relapses


This is a photo of my super awesome kids and I during my most recent hospitalization. I was in the hospital for 17 days and missed my daughters cheer competition and my boys’ football games. As a mom, this was the most difficult part of my whole hospital stay

Some of us with Autoimmune/Neurological diseases endure long hospital stays due to relapses/flare ups of our conditions. Since 2014, the onset of mine, I’ve been hospitalized many times with those stays lasting anywhere from 5-17 days. If I’m “lucky enough” not to have to be in the hospital during a flare up or relapse, I’m stuck in bed for days on end, often times hooked up to an IV and getting home health care.

Point blank: It sucks. So, what do you do when you’re a parent and you’re stuck in the hospital but still have the undying need to show your children you’re still there for them as there mom? Well, here are a few things I’ve done.

  1. FaceTime. Technology sure comes in handy sometimes. While I was in the hospital, a my sister went to my kids’ sports events and I watched them live using FaceTime. I even got to FaceTime with them right after the even to congratulate them and let them know I was there watching and I’m so super proud!
  2. When they come for a visit, don’t just sit around wallering in sadness. Do something fun! Have them bring a game they like to play, color with them, play toss the ball in the bedpan (personal fave).
  3. Don’t be afraid to let your kids see you sick. Do not keep them from seeing you just because you may be hooked up to machines, haven’t washed your hair in a week, and you look like crap. Put a hat on, throw on some lip gloss, and see your kids…because they really want to see you, no matter how well or unwell you are.

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