There is no word in the dictionary that describes the level of fatigue I have

fatigue You’ve tried explaining it to your spouse, your friends, your co-workers but there just aren’t the right words to make people understand just how extremely tired you are. Like “I’ve been up with the baby for 3 years straight, with no coffee, and no sleep, and it’s all I can do to stare at a wall right now” tired. So how can you really help people understand how exhausted it is just to be upright every day?!

Fatigue is one of the most debilitating conditions that people face with an auto-immune/neurological disease.  It can significantly interfere with a person’s ability to function at home and work, and is one of the primary causes of early departure from the workforce. Fatigue may be the most prominent symptom in a person who otherwise has minimal activity limitations. I mean think about it!! Your body is waging a war against itself daily! You should get a reward every day just for brushing your teeth!

So, here is what people need to know about your body and fatigue.

1. If I’m tired, I NEED a nap. I don’t just want a nap and I’m darn sure not being lazy. Why don’t we just let all of my white blood cells attack your body for a while like they do mine and see how you feel, hmm?

2. If I’m a little cranky, I NEED a nap.

3. If I ask you to repeat yourself 10 times or look at you like a deer in the headlights when we’re talking, I probably cannot concentrate because I’m so drained… and I NEED a nap

4. If you love me, you’ll buy me a travel pillow and blanket ❤

1 thought on “There is no word in the dictionary that describes the level of fatigue I have”

  1. This is great Lisa, good way to vent. I really can’t imagine what your going through and your always SO POSITIVE. It is nice to hear you tell it like it is. I’m so sorry your going though this. I’m always praying for you.


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